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A Message from OPANI

Some of you may have noticed that we have been a little quieter than usual. We want to fill you

Some of you may have noticed that we have been a little quieter than usual. We want to fill you in on what has been happening behind the scenes.

Over the years, the incredible support we have have received from our local community has been heartwarming and has far exceeded our expectations. This has led to us recognising the benefit in creating a separate Northern Ireland charity which will allow us to maximise the support and fundraising we can provide locally. We have therefore made the decision to register with the Northern Ireland Charity Commission and are pleased to announce the beginning of a new charity – OGCancerNI.

From September 1st 2018 we will no longer be operating as OPANI however our objectives will remain the same: 
1) To support patients and carers affected by Oesophago-Gastric (Oesophageal and Stomach) Cancer
2) To communicate the early signs and symptoms of Oesophago-Gastric cancer to promote early intervention. 
3) To work in partnership with healthcare providers in Northern Ireland to be a patients advocate and promote the best outcomes for sufferers. 
4) To act as the Voice of Patients and provide insight, support and care in a professional manner.

We cannot wait to start making a difference within our local community.

You can find our website at www.OGCancerNI.com (coming soon)

We can be contacted at any time on [email protected] or via our facebook page – facebook.com/OGCancerNI.

Thank you for your continued support over the years.

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Information for Supporters

OGCancerNI were unfortunately informed about a cyber incident involving Beacon, the third-party system that we use to help us manage our donors' and supporters' information. Beacon published its Final Cyber Security Incident Report on Thursday, 3rd September; for further information, see https://www.beaconcrm.org/incident-report.

In August OGCancerNI reported this matter to the Charity Commission for Northern Ireland as a serious incident. We're sorry this happened. We want to explain what we know and what it may mean for you.

What Happened?

Beacon informed its customers that an unauthorised third party had gained access to its systems and that data held within the system may have been accessed and copied. The incident occurred within Beacon's systems, and OGCancerNI itself was not individually targeted. Beacon CRM holds 1,500 charity accounts; all have been impacted.

What information may have been involved?

This information may include your name and personal contact details, donation information and information contained in records or attachments held within our Beacon database.

Please note that we do not store any bank or payment details in Beacon, nor do we store any specific clinical information. However, we may record you as a patient or a volunteer.

What has OGCancerNI done?

The Trustees have been working to establish exactly what happened and the potential impact on the people whose information we hold.
We have reviewed the information provided by Beacon and the Charity Commission, sought independent professional advice, and reported the incident to the appropriate authorities.

We have engaged an appropriately qualified Data Protection practitioner and have assessed the potential risks and have taken immediate steps to prevent further unauthorised access.

We are also reviewing our own procedures and our continued use of Beacon.

What should you do?

We recommend you remain alert to unexpected emails, text messages or phone calls.
Do not click on unexpected links or provide personal information to anyone.

If you receive a communication claiming to be from OGCancerNI and are unsure whether it is genuine, please get in touch with us directly using our usual contact details.

At present, we are not aware of any evidence that your information has been used fraudulently.

We understand this information may be concerning. OGCancerNI take the trust placed in us very seriously, and we are very sorry that information we hold about you may have been affected.

If you have any questions or concerns about this incident or the information that OGCancerNI holds about you, please get in touch with us at [email protected] or by phone at 07568157450.

We will continue to review the situation and will provide further information if anything significant changes.

With best wishes

The Trustees
OGCancerN

Read Beacon's final incident reportClose