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CATCH It ​Early Campaign Launched By OG Cancer NI To Encourage Early Diagnosis

Northern Ireland charity OG Cancer NI today warned people with symptoms of oesophageal and stomach cancer to contact their doctor

Northern Ireland charity OG Cancer NI today warned people with symptoms of oesophageal and stomach cancer to contact their doctor as soon as possible as they launch their “Catch It Early” 2021 awareness campaign.

More than 400 people per year were diagnosed with oesophageal and stomach cancer each year prior to the Covid-19 pandemic and OG Cancer NI, chair, Helen Setterfield, feels it is now more important as ever to make sure that anyone worried seeks help.

“The current lockdowns and urgent need to protect the health service has affected the number of people contacting their doctors,” she said. 

“But you should not hesitate to make the call if you experience persistent heartburn that doesn’t go away, trouble swallowing, regurgitation or hiccups that do not go away”

“Recent figures show that there has been a drop in the number of referrals to GPs of patients showing symptoms in 2020 compared to previous years so we want to make sure that we reverse that.

“Early diagnosis leads to a much better chance of survival from this cancer which has a 20% survival rate of five or more years, according to the NI Cancer Registry 2019.”

Helen herself is a survivor of oesophageal cancer as is Shauneen Brown from Lurgan.

Even though the majority of cases are diagnosed in men and women over 60,

Shauneen wants everyone to be aware of the symptoms: “I was 40 when I was diagnosed and we know of people in their 30s who have been diagnosed and treated,” she explained. 

“Just because you might not fit the typical statistic doesn’t mean you shouldn’t take your symptoms seriously.”

OG Cancer NI was founded in 2018 and provides telephone support to newly diagnosed patients, information stands in the hospital, wellbeing meetings providing peer to peer and professional advice and support and funding for local research or equipment projects which will improve patient wellbeing.

“We work with GPs to raise awareness so when patients present with the symptoms of Oesophageal and Gastric cancers they take the appropriate action,” said Helen. 

“Consult your doctor if you experience persistent or recurring Indigestion, food sticking in your throat, difficulty swallowing, heartburn or acid reflux, hiccups that won’t go away, or unexplained weight loss.”

The OG Cancer NI Catch It Early campaign, funded by the National Lottery and OG Cancer, strives not only to increase the awareness of the signs of oesophageal-gastric cancers in the public but also throughout the medical and caring professions.

For further information go to ogcancerni.com, follow #OGCancerNI, call 07568 157450 or make an appointment to see your local GP today.

Louise Collins (OG Clinical Nurse Specialist, Belfast Trust), Karen Graham (OG Clinical Nurse Specialist, Belfast Trust) and Maureen Toner (OG Clinical Nurse Specialist, Belfast Trust) outside the Cancer Centre at the Belfast City Hospital ahead of the launch of the OG Cancer 2021 Catch It Early campaign which is encouraging people to look for the signs of oesophageal-gastric cancers. More info at https://ogcancerni.com Photo by Francine Montgomery / Excalibur Press

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Information for Supporters

OGCancerNI were unfortunately informed about a cyber incident involving Beacon, the third-party system that we use to help us manage our donors' and supporters' information. Beacon published its Final Cyber Security Incident Report on Thursday, 3rd September; for further information, see https://www.beaconcrm.org/incident-report.

In August OGCancerNI reported this matter to the Charity Commission for Northern Ireland as a serious incident. We're sorry this happened. We want to explain what we know and what it may mean for you.

What Happened?

Beacon informed its customers that an unauthorised third party had gained access to its systems and that data held within the system may have been accessed and copied. The incident occurred within Beacon's systems, and OGCancerNI itself was not individually targeted. Beacon CRM holds 1,500 charity accounts; all have been impacted.

What information may have been involved?

This information may include your name and personal contact details, donation information and information contained in records or attachments held within our Beacon database.

Please note that we do not store any bank or payment details in Beacon, nor do we store any specific clinical information. However, we may record you as a patient or a volunteer.

What has OGCancerNI done?

The Trustees have been working to establish exactly what happened and the potential impact on the people whose information we hold.
We have reviewed the information provided by Beacon and the Charity Commission, sought independent professional advice, and reported the incident to the appropriate authorities.

We have engaged an appropriately qualified Data Protection practitioner and have assessed the potential risks and have taken immediate steps to prevent further unauthorised access.

We are also reviewing our own procedures and our continued use of Beacon.

What should you do?

We recommend you remain alert to unexpected emails, text messages or phone calls.
Do not click on unexpected links or provide personal information to anyone.

If you receive a communication claiming to be from OGCancerNI and are unsure whether it is genuine, please get in touch with us directly using our usual contact details.

At present, we are not aware of any evidence that your information has been used fraudulently.

We understand this information may be concerning. OGCancerNI take the trust placed in us very seriously, and we are very sorry that information we hold about you may have been affected.

If you have any questions or concerns about this incident or the information that OGCancerNI holds about you, please get in touch with us at [email protected] or by phone at 07568157450.

We will continue to review the situation and will provide further information if anything significant changes.

With best wishes

The Trustees
OGCancerN

Read Beacon's final incident reportClose