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Chairperson’s comment on spiralling waiting times for OG patients

OGCancerNI findings highlight a critical issue with significant implications for patients’ survival and well-being. Long waiting times, especially for those with

OGCancerNI findings highlight a critical issue with significant implications for patients’ survival and well-being. Long waiting times, especially for those with red flag referrals for suspected cancer, not only delay life-saving diagnoses and treatments but also exacerbate stress and anxiety for patients and their families.

The “Catch It Early” campaign’s mission underscores a well-documented fact: early diagnosis is key to effective treatment, improved prognosis, and increased survival rates in cancer care. Yet, without timely access to initial consultations, even the best awareness efforts are hampered by systemic bottlenecks. A delay of weeks, months, or even up to a year could make an otherwise treatable condition potentially fatal, and our insights demonstrate just how urgent the situation is for oesophageal and gastric cancer patients across Northern Ireland.

Health Minister Mike Nesbitt pointed out that the healthcare workforce crisis and budget shortfalls add complexity to an already challenging situation. The current £100 million shortfall and disparities in healthcare worker pay worsen recruitment and retention issues, stretching an already overextended workforce. However, a clear pathway to reducing waiting times must be established, even amidst these fiscal challenges.

In addition to our call for immediate action from the Health Minister, perhaps further advocacy efforts could include:

  1. Public Reporting of Waiting Times: Regularly published data on waiting times by local health trusts would increase transparency and incentivise improvement.
  2. Exploration of Short-Term Solutions: Temporary measures, such as extending consultant clinic hours or utilising telemedicine for initial consultations, could help alleviate immediate backlogs.
  3. Investment in Diagnostic Resources: Increasing capacity in endoscopy and radiology services specifically for red-flag cases could expedite initial assessments.

Our plan to request a meeting with the Health Minister is timely and necessary. Collaboration with other stakeholders, including healthcare professionals and patient advocacy groups, could add further weight to OGCancerNI’s campaign and ultimately prompt faster action on this critical issue.

Mrs Helen Setterfield, MBE

Chair, OGCancerNI

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Information for Supporters

OGCancerNI were unfortunately informed about a cyber incident involving Beacon, the third-party system that we use to help us manage our donors' and supporters' information. Beacon published its Final Cyber Security Incident Report on Thursday, 3rd September; for further information, see https://www.beaconcrm.org/incident-report.

In August OGCancerNI reported this matter to the Charity Commission for Northern Ireland as a serious incident. We're sorry this happened. We want to explain what we know and what it may mean for you.

What Happened?

Beacon informed its customers that an unauthorised third party had gained access to its systems and that data held within the system may have been accessed and copied. The incident occurred within Beacon's systems, and OGCancerNI itself was not individually targeted. Beacon CRM holds 1,500 charity accounts; all have been impacted.

What information may have been involved?

This information may include your name and personal contact details, donation information and information contained in records or attachments held within our Beacon database.

Please note that we do not store any bank or payment details in Beacon, nor do we store any specific clinical information. However, we may record you as a patient or a volunteer.

What has OGCancerNI done?

The Trustees have been working to establish exactly what happened and the potential impact on the people whose information we hold.
We have reviewed the information provided by Beacon and the Charity Commission, sought independent professional advice, and reported the incident to the appropriate authorities.

We have engaged an appropriately qualified Data Protection practitioner and have assessed the potential risks and have taken immediate steps to prevent further unauthorised access.

We are also reviewing our own procedures and our continued use of Beacon.

What should you do?

We recommend you remain alert to unexpected emails, text messages or phone calls.
Do not click on unexpected links or provide personal information to anyone.

If you receive a communication claiming to be from OGCancerNI and are unsure whether it is genuine, please get in touch with us directly using our usual contact details.

At present, we are not aware of any evidence that your information has been used fraudulently.

We understand this information may be concerning. OGCancerNI take the trust placed in us very seriously, and we are very sorry that information we hold about you may have been affected.

If you have any questions or concerns about this incident or the information that OGCancerNI holds about you, please get in touch with us at [email protected] or by phone at 07568157450.

We will continue to review the situation and will provide further information if anything significant changes.

With best wishes

The Trustees
OGCancerN

Read Beacon's final incident reportClose