The support that I was given the whole way through was just amazing

When East Antrim MLA, Stewart Dickson, was having difficulty getting food down, he had never heard of oesophageal cancer, yet within a few short weeks he was on a journey that saw chemotherapy, surgery and a roller coaster ride of emotions.
That journey began in July 11, 2019. 

“For a few months I’d been having some difficulty, not really in swallowing, but finding it difficult to get food down,” Stewart explained. “It wasn’t all the time, but there were occasions when something just didn’t feel that it was going the whole way down.”
Finally going to his GP the story became clearer.

“Many GPs in the first instance will simply prescribe antacids, which mine did, but, and this is the important bit, he said he was going to have me examined further, and said that he was going to get me signed up for a camera test in Antrim Area Hospital. I didn’t think much more about it.”

He believed it was just an ulcer but just on the basis of the conversation with Stewart the doctor red flagged his case.

On July 11 he had a camera test, and soon learned that it wasn’t an ulcer.

“I was wide awake and after the initial bit of them putting the camera down, I could hear the doctor saying ‘take a pic of this’, ‘take a pic of that’. I was thinking, ‘this isn’t good’,” Stewart said. “There was about a half an hour recovery period after the procedure and the doctor came and spoke to me and my wife and she said ‘I’ve seen something. It looks very like a tumour’.”

Speaking as the charity OGCancerNI continues its Catch It Early campaign to alert everyone to the symptoms of oesophageal and stomach cancer, Stewart explained that as well as its campaigning and support awareness goes beyond informing the public.

“OGCancerNI provides high-level, technical advice and assistance to GPs and other clinicians across NI,” he explained. “If you’re a GP that has just met one of the specialist nurses, or has had info provided to you by our charity, then the next time a patient comes in with a bit of difficulty swallowing and wants Gaviscon, the GP will know that that’s not the answer.”

Within a week of his first camera test Stewart was back at Antrim Area Hospital to be told it was a tumour, and he was being referred to the care of the multi-disciplinary team at the Cancer Centre at Belfast City Hospital.

Having been invited to a meeting at Whiteabbey Hospital, the team Stewart, now 70, and his wife arrived, unsure what to expect.

“We went along to Whiteabbey Hospital at about 12’o’clock and the consultant there told me that I had oesophageal cancer and that it was going to be a very difficult journey,” said Stewart. “However, what he said was that the team at the City Hospital had decided that, on the basis of what they’d seen, that they were going to be able to treat it and he was very kind and told me that the surgery was brutal and that I would have chemo as well, and that the City Hospital would be in touch with me.

“We left there in a state of shock but at least knowing that something could be done and was going to be done. Then got into the car in a state of trauma. I hadn’t even got my seatbelt on when my mobile went and it was a nurse from the City Hospital saying ‘can you be here on Monday morning?’ Of course I said yes I could.”
Before the surgery Stewart was to receive several rounds of chemotherapy. During one of his visits to the cancer centre he met the volunteers of OGCancerNI.

“They had an information stand at the Tuesday clinic in the City Hospital,” he said. “The upper Gastrointestinal and stomach cancer clinic is every Tuesday so there was an opportunity for families and patients as they’re passing through to have a chat with the volunteers.

“The help and advice and leaflets that they were giving out was very reassuring to myself, my wife and others.”

And, given the stories of the volunteers Stewart was inspired.

“The first lady I met at the OG stand told me she’d had her op 18 years ago, another said eleven, another three years, and I’m thinking that’s pretty good,” he said. “That was very encouraging – to see people who’d not only been through it but had survived and were looking well and were able to say how well they were able to manage afterwards.”

For further information go to ogcancerni.com, follow #OGCancerNI, call 07568 157450 or make an appointment to see your local GP today.

ENDS

Editors Notes

For more information contact publicist Tina Calder, Excalibur Press, tina@excaliburpress.co.uk, 07305354209. Alternatively Hannah Chambers at  hannah@excaliburpress.co.uk 

About OG Cancer NI

OGCancer NI was set up in 2018 specifically to benefit patients and families affected by Oesophago-gastric cancer. The organisation has three main objectives:

  • To support patients and carers affected by Oesophago-Gastric (Oesophageal and Stomach) Cancer
  • To communicate the early signs and symptoms of Oesophago-Gastric cancer to promote early intervention.
  • To work in partnership with healthcare providers to be patient advocates and promote best outcomes.

What is Oesophago-Gastric Cancer?

Oesophageal cancer is cancer of the gullet and gastric cancer is cancer of the stomach. Combined, they are medically known as oesophago-gastric (OG) cancer. The oesophagus (more commonly known as the gullet or food pipe) is the long tube that carries food from the throat to the stomach. In Northern Ireland in 2016, a total of 226 people were diagnosed with oesophageal (gullet) cancer. In the same year, 214 people were newly diagnosed with gastric (stomach) cancer.

Statistics on Oesophageal Cancer (NI Cancer Registry 2019) During 2014-2018: 

  • Oesophageal cancer made up 3.2% of all male cancers (ex NMSC), and 1.4% of all female cancers (ex NMSC). 
  • Oesophageal cancer risk increased with age, with 63.2% of men and 72.3% of women aged 65+ at diagnosis.
  • The median age at diagnosis was 68 for men and 74 for women.
  • 5.0% of cases were diagnosed among those aged under 50. 
  • There were 155 male and 65 female cases of oesophageal cancer diagnosed each year.
  • There were 127 male and 80 female cases of stomach cancer diagnosed each year.
  • Stomach cancer risk increased with age, with 73.2% of men and 72.5% of women aged 65 years or more at diagnosis
  • 6.3% of cases were diagnosed among those aged under 50.

Stewart began his course of chemotherapy before the operation, as well as appointments with dietitian and a physiotherapy to prepare him.
“The chemo was not as harsh and as brutal as I thought it was going to be,” he explained. “I can’t say it was pleasant. I can say that after the first round, within a week, it hit fairly hard and I really couldn’t get out of bed for a week.
“I was taking the chemo at home and by the end of the third round I was actually able to travel. I had a meeting in Europe and I went to it and I was feeling fine by the end of three rounds.”
After the chemotherapy Stewart was set to go for surgery and was admitted on December 8, his birthday.
“Some birthday present! The next morning I was taken off to theatre and the rest as they say is history,” he said. “The recovery is long and hard and difficult, but the team of people in 2 North in the City Hospital were absolutely incredible. You’re as weak as a kitten. You’ve got more tubes and things hanging out of you but, slowly, you progress.
“It’s incredibly difficult, but the support that I was given the whole way through was just amazing.”
Acknowledging that men make some of the worst people in attending their GP Stewart has one simple message.
“See your GP as soon as possible and I know that’s difficult at present,” he said. “Your GP is there for you and yes the first call may be a phone call, but if your GP suspects that they need to see you, you’ll get a face-to-face appointment with your GP. Persist. It’s not easy at the minute but the important thing is to speak to a GP and be open and honest about how you’re feeling and your symptoms and let them make the professional decisions that they need to make.”
Learn more about the work of OGCancerNI at: https://ogcancerni.com/.

The Catch It Early campaign advises: 

Oesophageal cancer like many other cancers does not discriminate between age or sex and knowing and recognising the signs and symptoms are crucial to early diagnosis.  If you suffer from any of the following symptoms for longer than three weeks you should consult your doctor.

  • Persistent Indigestion
  • Difficulty swallowing or food sticking
  • Heartburn acid reflux
  • Hiccupping that wont go away
  • Unexplained weight loss.

Early Diagnosis is Key #CatchItEarly

Oesophageal cancer like many other cancers does not discriminate between age or sex and knowing and recognising the signs and symptoms are crucial to early diagnosis.  If you suffer from any of the following symptoms for longer than 3 weeks you should consult your doctor.

  • Persistent Indigestion
  • Difficulty swallowing or food sticking
  • Heartburn acid reflux
  • Hiccupping that wont go away
  • Unexplained weight loss.

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