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OGCancer NI Mobile Unit Launch – Stormont 22 June 2022

Mobile Unit To Raise Awareness Of Oesophageal And Stomach Cancer Charity will travel across NI to urge patients and professionals


Mobile Unit To Raise Awareness Of Oesophageal And Stomach Cancer

Charity will travel across NI to urge patients and professionals to catch it early

OG Cancer has launched their new mobile unit to raise awareness of oesophageal and stomach cancer at an event at Stormont that will see their branded vehicle on the first of its many journeys across Northern Ireland.

Funding for the vehicle was provided from The National Lottery Community Fund, which has been made possible thanks to National Lottery players.

Backed by this fund, and further supported by Ford, the van will support those who are already being treated, people who are worried about symptoms, or those who have recently received a diagnosis.

Helen Setterfield MBE, Chair of OG Cancer NI said that with approximately 400 people diagnosed each year it is important to make sure that people know what to look out for.

“I was diagnosed with oesophageal cancer 18 years ago,” she said. “I am only here today as I was lucky to ‘catch it early’. This type of cancer is extremely aggressive, however. I have seen first-hand the difference in the cancer journey for patients diagnosed at an early stage.”

In addition to the mobile unit, and with support of the National Lottery funding and funds raised by supporters, OG Cancer will be launching a dedicated advertising campaign on radio, various digital platforms and on ADshel bus shelters, ensuring that the charity’s message reaches as many people as possible.

The campaign aims to improve the prognosis of patients in Northern Ireland, by increasing public awareness of oesophageal cancer, and by encouraging people to notice the symptoms and seek advice from their GP at the earliest possible time before the cancer spreads.

Health Minister Robin Swann said: “Early diagnosis is key to fighting this disease, therefore raising awareness of the symptoms of oesophageal and stomach cancer is vital. For anyone who is concerned or worried, please speak to your GP.

“This new mobile unit will not only help raise awareness, but will also be a very important source of support for those in Northern Ireland who have been diagnosed with this type of cancer.”

The campaign will also strive to increase awareness of oesophageal cancer throughout the medical and caring professions.

The event to launch this new initiative is being hosted by Stewart Dickson MLA, himself a survivor of oesophageal cancer, who urged people to know what to look out for.

“Symptoms of oesophageal and stomach cancer include persistent heartburn or acid reflux that doesn’t go away, trouble swallowing, sudden weight loss, regurgitation or hiccups that do not go away,” he said. “I personally know how important it is that this type of cancer is caught early.”

According to the Northern Ireland Cancer Registry, only 10.4% of upper gastrointestinal cancer patients are diagnosed at the earliest stage. The five year survival rate for those diagnosed at the earliest stage is 68%, compared to two percent for those diagnosed at stage four.

Leanne Molloy, 37, is a mother of two and a survivor of oesophageal cancer. Commenting on OG Cancer’s new campaign, she said: “The campaign is brilliant. Oesophageal cancer is not common, I had never heard of it before I was diagnosed. 

“If you google it, the statistics show older men, so it’s so important to get this out there, for people and GP’s. It should be made aware that anyone can get it.”

Leanne stressed the importance of taking action if you notice any symptoms. “If you have symptoms, get it checked out,” she said, adding: “Don’t keep taking tablets if it’s persistent hiccups or burping. Go and see your doctor. That’s what the doctors are there for.”

Adrian Hale, 55, who is also a survivor of oesophageal cancer, and runs a cancer support group at his local church in his spare time, joined Leanne in stressing the importance of getting diagnosed early. 

“I was lucky enough to be in the minority percentage of people who were eligible for surgery because I was diagnosed early,” said Adrian. 

“If I see someone with constant heartburn, I will encourage them to get to the doctors. If you have symptoms, get to a doctor and hound them for an endoscope.”  

This latest initiative will provide a much needed outreach to people who have never heard of the condition. It will not only help raise awareness but it will also provide essential support in hard to reach areas.

Consultant Upper GI Surgeon Mr Andrew Kennedy said: “As a surgeon treating patients with oesophago-gastric cancer, I cannot over-emphasise the essential role provided by OG Cancer NI to my patients.”

Kate Beggs, Northern Ireland Director of The National Lottery Community Fund said: 

“We look forward to seeing the difference the £100,823 National Lottery grant will make to local people, by raising awareness of the symptoms of OG Cancer through this dedicated campaign, helping improve early detection and survival rates across Northern Ireland. Well done to everyone involved.

“Thanks to National Lottery players, over £30 million is raised each week for good causes like this across the UK.”

OG Cancer’s new mobile unit will make sure that rural areas can be targeted, as well as urban centres. The van can be located at various points and can be booked to attend key events throughout the country.

If you would like to get involved in volunteering or have an event coming up that the OG Cancer Mobile unit can attend, please get in touch at [email protected].

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Information for Supporters

OGCancerNI were unfortunately informed about a cyber incident involving Beacon, the third-party system that we use to help us manage our donors' and supporters' information. Beacon published its Final Cyber Security Incident Report on Thursday, 3rd September; for further information, see https://www.beaconcrm.org/incident-report.

In August OGCancerNI reported this matter to the Charity Commission for Northern Ireland as a serious incident. We're sorry this happened. We want to explain what we know and what it may mean for you.

What Happened?

Beacon informed its customers that an unauthorised third party had gained access to its systems and that data held within the system may have been accessed and copied. The incident occurred within Beacon's systems, and OGCancerNI itself was not individually targeted. Beacon CRM holds 1,500 charity accounts; all have been impacted.

What information may have been involved?

This information may include your name and personal contact details, donation information and information contained in records or attachments held within our Beacon database.

Please note that we do not store any bank or payment details in Beacon, nor do we store any specific clinical information. However, we may record you as a patient or a volunteer.

What has OGCancerNI done?

The Trustees have been working to establish exactly what happened and the potential impact on the people whose information we hold.
We have reviewed the information provided by Beacon and the Charity Commission, sought independent professional advice, and reported the incident to the appropriate authorities.

We have engaged an appropriately qualified Data Protection practitioner and have assessed the potential risks and have taken immediate steps to prevent further unauthorised access.

We are also reviewing our own procedures and our continued use of Beacon.

What should you do?

We recommend you remain alert to unexpected emails, text messages or phone calls.
Do not click on unexpected links or provide personal information to anyone.

If you receive a communication claiming to be from OGCancerNI and are unsure whether it is genuine, please get in touch with us directly using our usual contact details.

At present, we are not aware of any evidence that your information has been used fraudulently.

We understand this information may be concerning. OGCancerNI take the trust placed in us very seriously, and we are very sorry that information we hold about you may have been affected.

If you have any questions or concerns about this incident or the information that OGCancerNI holds about you, please get in touch with us at [email protected] or by phone at 07568157450.

We will continue to review the situation and will provide further information if anything significant changes.

With best wishes

The Trustees
OGCancerN

Read Beacon's final incident reportClose