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Information

As a charity, we aim to educate. Knowledge of symptoms leads to earlier intervention which can save lives!

One of the main problems we face is lack of awareness and understanding of oesophago-gastric cancer. Many people struggle with the pronunciation, spelling and even the ability to find the oesophagus in the body.

As a charity, we aim to educate. Knowledge of symptoms leads to earlier intervention which can save lives! Please browse our information pages to find out more about the history of Oesophago-Gastric cancer, the signs and symptoms and what to expect during and after diagnosis.

WHAT IS OESOPHAGO-GASTRIC CANCER?

Oesophageal cancer is cancer of the gullet and gastric cancer is cancer of the stomach. Combined, they are medically known as oesophago-gastric (OG) cancer.

The oesophagus (more commonly known as the gullet or food pipe) is the long tube that carries food from the throat to the stomach.

In Northern Ireland in 2016, a total of 226 people were diagnosed with oesophageal (gullet) cancer. In the same year, 214 people were newly diagnosed with gastric (stomach) cancer.

WHAT ARE THE SIGNS AND SYMPTOMS?

Symptoms which indicate there may be cancer in the oesophagus are often vague and fairly common symptoms and therefore can be overlooked. However, as with any other area of your body, any changes, however subtle, if persistent should not be ignored.

If you have any of the following symptoms you should see your local doctor and discuss them further.

  • Swallowing difficulties or a sensation of food sticking in your chest or throat
  • Pain or discomfort as food passes down the oesophagus
  • Persistent heartburn/acid reflux (persistent would be 2 to 3 weeks without passing off)
  • Persistent cough or hoarseness
  • Persistent hiccups
  • Regurgitation of food on a regular basis
  • Persistent nausea/retching/heaving
  • Unexpected weight loss/unusual tiredness

WHAT TO EXPECT FROM A DIAGNOSIS

How do you get a diagnosis?

Your GP may initially give you a medication to see if that can solve your symptoms. If after two to three weeks your symptoms have not gone away, he/she may refer you for an endoscopy. This is a camera which is passed down your oesophagus (with sedation if you prefer) where the endoscopist can have a look at the lining of the oesophagus and the stomach. They may take biopsies if they are unhappy about anything they see. This does not necessarily mean you have cancer; it may be that they have seen some ulceration or other changes in the normal linings.

Having tests which could lead to a diagnosis of cancer is a frightening and often shocking experience. The waiting for test results and the fears generated whilst you are agonising over what could be wrong with you can be very wearing on both the patient and their loved ones.

What happens after diagnosis?

When the results of the tests are all finally done and assessed you will be called to see your consultant for the results. If the consultant tells you that you have cancer, you may hear nothing past that point in the consultation. We are often told that the rest of the appointment is a blur. It is a form of shock and quite understandable; that is why it is so important for you to take someone with you to important appointments. They will often hear things that you don’t. It is at this point that we like patients to hear about us. It is important to know that you are not alone and that we are there to support and help.

Information for Supporters

OGCancerNI were unfortunately informed about a cyber incident involving Beacon, the third-party system that we use to help us manage our donors' and supporters' information. Beacon published its Final Cyber Security Incident Report on Thursday, 3rd September; for further information, see https://www.beaconcrm.org/incident-report.

In August OGCancerNI reported this matter to the Charity Commission for Northern Ireland as a serious incident. We're sorry this happened. We want to explain what we know and what it may mean for you.

What Happened?

Beacon informed its customers that an unauthorised third party had gained access to its systems and that data held within the system may have been accessed and copied. The incident occurred within Beacon's systems, and OGCancerNI itself was not individually targeted. Beacon CRM holds 1,500 charity accounts; all have been impacted.

What information may have been involved?

This information may include your name and personal contact details, donation information and information contained in records or attachments held within our Beacon database.

Please note that we do not store any bank or payment details in Beacon, nor do we store any specific clinical information. However, we may record you as a patient or a volunteer.

What has OGCancerNI done?

The Trustees have been working to establish exactly what happened and the potential impact on the people whose information we hold.
We have reviewed the information provided by Beacon and the Charity Commission, sought independent professional advice, and reported the incident to the appropriate authorities.

We have engaged an appropriately qualified Data Protection practitioner and have assessed the potential risks and have taken immediate steps to prevent further unauthorised access.

We are also reviewing our own procedures and our continued use of Beacon.

What should you do?

We recommend you remain alert to unexpected emails, text messages or phone calls.
Do not click on unexpected links or provide personal information to anyone.

If you receive a communication claiming to be from OGCancerNI and are unsure whether it is genuine, please get in touch with us directly using our usual contact details.

At present, we are not aware of any evidence that your information has been used fraudulently.

We understand this information may be concerning. OGCancerNI take the trust placed in us very seriously, and we are very sorry that information we hold about you may have been affected.

If you have any questions or concerns about this incident or the information that OGCancerNI holds about you, please get in touch with us at [email protected] or by phone at 07568157450.

We will continue to review the situation and will provide further information if anything significant changes.

With best wishes

The Trustees
OGCancerN

Read Beacon's final incident reportClose