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Adrian's Story

It was in 2018, I was 51 years old and I had just completed a job for the Scout association in Crawfordsburn. After this I found myself having some discomfort when eating and thought I had pushed myself too far and developed a hiatus hernia. My friend suggested I go to the Doctor. As I had a stomach ulcer in the past the GP decided to send me for an endoscope. After the endoscope the Consultant told me I had a tumor right on the junction of my oesophagus and stomach. They were unsure how to treat it so treated it as both oesopageal and gastric cancer.

I was given my diagnosis in September and started my first round of three chemotherapy sessions from December to February, One the 20th March 2019 I had my surgery. Mr McAuley removed the majority of my oesophagus from the top of my breastbone as well as the top third of my stomach. I was in the hospital recovering for 9 days. I had to go back in briefly as my back was hurt during the operation, but it is fine now. In July I had started three more cycles of chemotherapy until September. After my chemotherapy was completed in September, I laid low for a while until after Christmas and tried to get back to work for February 2020, then Covid came. I now pick and choose what work I want to do as I don’t have the same stamina. 

Eating can also be a challenge and I have had to have my throat stretched a few times, which has helped. Issues now would be mainly around the quantity of food and what I can eat. I would also be affected by dumping syndrome and get low blood sugar sometimes as well as nerve pain from surgery. But I am getting follow-up medication and physio care to support me. I have now set up a cancer support group in my church, side by side and I hope this gives me the chance to support other people. I have reached out to people who are displaying symptoms and offered to speak with them.

We asked Adrian ‘What would you say to someone going through treatment now? What would your advice be?’ 

Try and get people to treat you as the person you always were. If you enjoy a laugh and a joke, get them to treat you as you were. Make sure your better half still has their identity too. Everyone asked how I was, but my wife was the one having sleepless nights. The carers often get overlooked.

We also asked Adrian how he feels about OG Cancer’s NI campaign to raise awareness of the early symptoms?

The campaign is so important. If you have symptoms, get to a doctor and hound them for an endoscope. It was a locum doctor who sent me for an endoscope after picking up the stomach ulcer on my notes. I am at the youngest age of people who get Oesophageal cancer – it can happen. I was lucky enough to be in the minority percentage of people who were eligible for surgery, because I was diagnosed early. If I see someone with constant heartburn, I will encourage them to get to the doctors.

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Information for Supporters

OGCancerNI were unfortunately informed about a cyber incident involving Beacon, the third-party system that we use to help us manage our donors' and supporters' information. Beacon published its Final Cyber Security Incident Report on Thursday, 3rd September; for further information, see https://www.beaconcrm.org/incident-report.

In August OGCancerNI reported this matter to the Charity Commission for Northern Ireland as a serious incident. We're sorry this happened. We want to explain what we know and what it may mean for you.

What Happened?

Beacon informed its customers that an unauthorised third party had gained access to its systems and that data held within the system may have been accessed and copied. The incident occurred within Beacon's systems, and OGCancerNI itself was not individually targeted. Beacon CRM holds 1,500 charity accounts; all have been impacted.

What information may have been involved?

This information may include your name and personal contact details, donation information and information contained in records or attachments held within our Beacon database.

Please note that we do not store any bank or payment details in Beacon, nor do we store any specific clinical information. However, we may record you as a patient or a volunteer.

What has OGCancerNI done?

The Trustees have been working to establish exactly what happened and the potential impact on the people whose information we hold.
We have reviewed the information provided by Beacon and the Charity Commission, sought independent professional advice, and reported the incident to the appropriate authorities.

We have engaged an appropriately qualified Data Protection practitioner and have assessed the potential risks and have taken immediate steps to prevent further unauthorised access.

We are also reviewing our own procedures and our continued use of Beacon.

What should you do?

We recommend you remain alert to unexpected emails, text messages or phone calls.
Do not click on unexpected links or provide personal information to anyone.

If you receive a communication claiming to be from OGCancerNI and are unsure whether it is genuine, please get in touch with us directly using our usual contact details.

At present, we are not aware of any evidence that your information has been used fraudulently.

We understand this information may be concerning. OGCancerNI take the trust placed in us very seriously, and we are very sorry that information we hold about you may have been affected.

If you have any questions or concerns about this incident or the information that OGCancerNI holds about you, please get in touch with us at [email protected] or by phone at 07568157450.

We will continue to review the situation and will provide further information if anything significant changes.

With best wishes

The Trustees
OGCancerN

Read Beacon's final incident reportClose