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Kevin's Story

I was aware of the symptoms, that’s why I caught it early!

Kevin Campbell is 50 years old and lives in Fintona, near Omagh. Kevin is a keen cyclist and father to a 10 year old son. It was his mother’s previous diagnosis and unfortunate passing that helped to save his life.

With an overarching awareness of the early signs and symptoms of oesophageal cancer, Tyrone man Kevin was quick to seek advice from his GP after finding a restriction when swallowing food one routine lunchtime.

“My mother had been diagnosed with oesophageal cancer in 2007 and unfortunately passed away as her diagnosis came too late for surgical intervention. I was very acutely aware of the symptoms because of this,” said Kevin.

“The GP referred me for an endoscope and the doctors then discovered a tumour in my oesophagus. This was only the start of my journey with blood tests, hospital visits, exploratory checks and a decision on treatment.”

As Kevin recognised the early signs, he was able to have an oesophagectomy not even a year later, in May 2017.

As the standard post operation procedure, Kevin was required to attend monthly hospital visits. It was during one of these hospital visits that a clinical nurse at City Hospital introduced him to OG Cancer NI.

OG Cancer NI is a Northern Ireland based charity that supports patients and carers facing an oesophageal or stomach cancer diagnosis, while also aiming to raise awareness of the early symptoms of the illness.

“It was great to have contact with the OG Nurse Specialists for support, as well as community nurses,” shared Kevin. “The effect is not just physical, it’s mental, in terms of body confidence and how you look and feel about yourself. But it is important to get back to a sense of normality.

“As a keen cyclist, I decided to get back on the bike and get a level of fitness back up… Whilst walking up and down the ward I saw an advertisement for an Oesophacycle for OG Cancer and, the year after, I took part.”

In line with their aims, OG Cancer NI has recently launched their new mobile unit. As the unit makes its way across Northern Ireland it will serve as a support for those currently receiving treatment, worried about symptoms, or the recently diagnosed.

The long-term objective of the mobile unit is to spread awareness in order to increase survival rates.

“Campaigns like this are so beneficial”, added Kevin. “The key thing is early diagnosis, due to my mother it was always in the back of my mind and helped me to push forward for treatment. I was very aware.

“Early awareness is the key; if you are experiencing reflux, weight loss or having trouble swallowing, you need to be so proactive in getting yourself looked at and receiving medical advice. That’s the key.”

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Information for Supporters

OGCancerNI were unfortunately informed about a cyber incident involving Beacon, the third-party system that we use to help us manage our donors' and supporters' information. Beacon published its Final Cyber Security Incident Report on Thursday, 3rd September; for further information, see https://www.beaconcrm.org/incident-report.

In August OGCancerNI reported this matter to the Charity Commission for Northern Ireland as a serious incident. We're sorry this happened. We want to explain what we know and what it may mean for you.

What Happened?

Beacon informed its customers that an unauthorised third party had gained access to its systems and that data held within the system may have been accessed and copied. The incident occurred within Beacon's systems, and OGCancerNI itself was not individually targeted. Beacon CRM holds 1,500 charity accounts; all have been impacted.

What information may have been involved?

This information may include your name and personal contact details, donation information and information contained in records or attachments held within our Beacon database.

Please note that we do not store any bank or payment details in Beacon, nor do we store any specific clinical information. However, we may record you as a patient or a volunteer.

What has OGCancerNI done?

The Trustees have been working to establish exactly what happened and the potential impact on the people whose information we hold.
We have reviewed the information provided by Beacon and the Charity Commission, sought independent professional advice, and reported the incident to the appropriate authorities.

We have engaged an appropriately qualified Data Protection practitioner and have assessed the potential risks and have taken immediate steps to prevent further unauthorised access.

We are also reviewing our own procedures and our continued use of Beacon.

What should you do?

We recommend you remain alert to unexpected emails, text messages or phone calls.
Do not click on unexpected links or provide personal information to anyone.

If you receive a communication claiming to be from OGCancerNI and are unsure whether it is genuine, please get in touch with us directly using our usual contact details.

At present, we are not aware of any evidence that your information has been used fraudulently.

We understand this information may be concerning. OGCancerNI take the trust placed in us very seriously, and we are very sorry that information we hold about you may have been affected.

If you have any questions or concerns about this incident or the information that OGCancerNI holds about you, please get in touch with us at [email protected] or by phone at 07568157450.

We will continue to review the situation and will provide further information if anything significant changes.

With best wishes

The Trustees
OGCancerN

Read Beacon's final incident reportClose