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Jean Frecknall's Story

Back in the summer of 2020, a routine blood test showed that I was very anaemic. Thankfully, my GP noted that I shouldn’t typically be anaemic at my stage of life and referred me for investigations. At this stage, I felt completely normal, apart from what I would describe as occasional heartburn, which I’d had for quite some time and wasn’t too concerned about.

From there, an endoscope showed that I had a 3cm tumour at the junction of my oesophagus and my stomach which of course was a shock. I had some scans to check what stage this was and to agree a plan of action. Ultimately this would involve chemotherapy followed by surgery.

“My husband Steve is an amputee and I am the main carer for my daughter Emma who has Spina Bifida and my first thought was honestly about them and how an illness like mine would impact on my ability to care for Emma.  Thankfully I was able to seek immediate practical help through the support of social care.

“The main side effect I had from chemotherapy was fatigue and I had some complications after surgery that thankfully were treatable. I remember a consultant saying I could expect to take a full year to recover and they were right. In saying that, I now feel quite normal. I can eat a reasonable sized meal and the experience is almost fading into the background of my mind as I go about more or less living my normal life.

“I would say to anyone facing this illness, there is support out there and having a charity like OG Cancer NI is great. You can meet people who understand the illness and can swap stories with you about what you’ve all been through. You’ll have a common bond and that really helps. I would also say be patient in your recovery. It is easier said than done but it really does take time to feel close to your old self again – realising that this phase is normal, is good to know.

“And to anyone who, like me, finds themselves facing cancer as a carer, definitely prioritise your health. You can’t take care of people you love otherwise. I know I deliberated going for further tests at the start of my illness because I really didn’t want to disrupt things for Emma and Steve. I almost didn’t want to know. But now I think, what if I hadn’t? My story would be very different, as would theirs.

“One day during my recovery there was some music on the radio and I just instinctively started to dance. It sounds silly but this was a pivotal moment for me. I realised I hadn’t wanted to dance or even move much in a long time. I was getting my spirit back. 

“My belief is that cancer was just one part of my life – it is in the past and I just deal with the here and now. We since got a little dog for our family, Bella the Yorkiepoo, which has brought us joy and activity. I’m also volunteering once a month with the OG Cancer information stand at the Upper GI Clinic at Belfast City Hospital.

“There is life during and after cancer. I think it’s important people hear that.”

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Information for Supporters

OGCancerNI were unfortunately informed about a cyber incident involving Beacon, the third-party system that we use to help us manage our donors' and supporters' information. Beacon published its Final Cyber Security Incident Report on Thursday, 3rd September; for further information, see https://www.beaconcrm.org/incident-report.

In August OGCancerNI reported this matter to the Charity Commission for Northern Ireland as a serious incident. We're sorry this happened. We want to explain what we know and what it may mean for you.

What Happened?

Beacon informed its customers that an unauthorised third party had gained access to its systems and that data held within the system may have been accessed and copied. The incident occurred within Beacon's systems, and OGCancerNI itself was not individually targeted. Beacon CRM holds 1,500 charity accounts; all have been impacted.

What information may have been involved?

This information may include your name and personal contact details, donation information and information contained in records or attachments held within our Beacon database.

Please note that we do not store any bank or payment details in Beacon, nor do we store any specific clinical information. However, we may record you as a patient or a volunteer.

What has OGCancerNI done?

The Trustees have been working to establish exactly what happened and the potential impact on the people whose information we hold.
We have reviewed the information provided by Beacon and the Charity Commission, sought independent professional advice, and reported the incident to the appropriate authorities.

We have engaged an appropriately qualified Data Protection practitioner and have assessed the potential risks and have taken immediate steps to prevent further unauthorised access.

We are also reviewing our own procedures and our continued use of Beacon.

What should you do?

We recommend you remain alert to unexpected emails, text messages or phone calls.
Do not click on unexpected links or provide personal information to anyone.

If you receive a communication claiming to be from OGCancerNI and are unsure whether it is genuine, please get in touch with us directly using our usual contact details.

At present, we are not aware of any evidence that your information has been used fraudulently.

We understand this information may be concerning. OGCancerNI take the trust placed in us very seriously, and we are very sorry that information we hold about you may have been affected.

If you have any questions or concerns about this incident or the information that OGCancerNI holds about you, please get in touch with us at [email protected] or by phone at 07568157450.

We will continue to review the situation and will provide further information if anything significant changes.

With best wishes

The Trustees
OGCancerN

Read Beacon's final incident reportClose