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Caroline & Paddy Ellison's Story

“My husband Paddy hadn’t long retired in 2022 and we were busy making plans for lots of lovely travel together. Our first plan was to visit friends in Spain that summer. 

“Paddy had been suffering from acid reflux for quite some time. It wasn’t anything major but he was finding it hard to swallow some foods like bread, so we thought something mustn’t be quite right and went to get it checked out’.

“He went for an endoscope and a small tumour was identified at the edge of Paddy’s stomach and oesophagus. It felt completely unbelievable as Paddy was feeling good. Initially, Paddy’s outlook was positive as the tumour was small and removable. He went through chemotherapy in November 2021 and in February 2022, he was scheduled for an operation to remove the tumour.

“Unfortunately from there, Paddy experienced a lot of complications. His surgery didn’t go to plan and he had to have his stomach and part of his oesophagus removed. He managed two chemotherapy sessions after his surgery but he wasn’t recovering well and his scar became badly infected. There were many other issues throughout this time for Paddy to cope with and for us as a family to try and find solutions for. It was a very difficult time.

“A scan in August 2022 showed that Paddy’s cancer was very advanced and we were told there was nothing more that could be done. Paddy came home from hospital and passed away peacefully with me and his sons around him.

“To us, it is still shocking how Paddy’s illness went downhill. He was an active, fit and sociable man and sometimes it is hard to believe.

“At Christmas time, I held a fundraiser for OG Cancer NI, the charity that supports people in Northern Ireland with gastric and oesophageal cancer. I feel it is something I can do to help others in this situation. There are people in the charity’s network who have lost people to this type of cancer and having a place to talk about your feelings is important.

“Throughout Paddy’s illness, he didn’t give up. He tried everything he could to keep living and we made some special memories even though things were tough. Even during treatment and as his health was deteriorating, we were still together and that was so important for us.

“I have decided I am going to travel and have already been on some lovely trips to keep life going. That’s what Paddy and I wanted to do together – and what he would encourage me to do now.”

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Information for Supporters

OGCancerNI were unfortunately informed about a cyber incident involving Beacon, the third-party system that we use to help us manage our donors' and supporters' information. Beacon published its Final Cyber Security Incident Report on Thursday, 3rd September; for further information, see https://www.beaconcrm.org/incident-report.

In August OGCancerNI reported this matter to the Charity Commission for Northern Ireland as a serious incident. We're sorry this happened. We want to explain what we know and what it may mean for you.

What Happened?

Beacon informed its customers that an unauthorised third party had gained access to its systems and that data held within the system may have been accessed and copied. The incident occurred within Beacon's systems, and OGCancerNI itself was not individually targeted. Beacon CRM holds 1,500 charity accounts; all have been impacted.

What information may have been involved?

This information may include your name and personal contact details, donation information and information contained in records or attachments held within our Beacon database.

Please note that we do not store any bank or payment details in Beacon, nor do we store any specific clinical information. However, we may record you as a patient or a volunteer.

What has OGCancerNI done?

The Trustees have been working to establish exactly what happened and the potential impact on the people whose information we hold.
We have reviewed the information provided by Beacon and the Charity Commission, sought independent professional advice, and reported the incident to the appropriate authorities.

We have engaged an appropriately qualified Data Protection practitioner and have assessed the potential risks and have taken immediate steps to prevent further unauthorised access.

We are also reviewing our own procedures and our continued use of Beacon.

What should you do?

We recommend you remain alert to unexpected emails, text messages or phone calls.
Do not click on unexpected links or provide personal information to anyone.

If you receive a communication claiming to be from OGCancerNI and are unsure whether it is genuine, please get in touch with us directly using our usual contact details.

At present, we are not aware of any evidence that your information has been used fraudulently.

We understand this information may be concerning. OGCancerNI take the trust placed in us very seriously, and we are very sorry that information we hold about you may have been affected.

If you have any questions or concerns about this incident or the information that OGCancerNI holds about you, please get in touch with us at [email protected] or by phone at 07568157450.

We will continue to review the situation and will provide further information if anything significant changes.

With best wishes

The Trustees
OGCancerN

Read Beacon's final incident reportClose